Site Map
- About the Medical Home Portal
- About Medical Home
- Contact
- Feedback
- Guide to the Portal
- News and Events
- The Portal Periodical
- June 2011
- September 2011
- December 2011
- March 2012
- June 2012
- September 2012
- December 2012
- March 2013
- June 2013
- September 2013
- December 2013
- March 2014
- June 2014
- September 2014
- December 2014
- March 2015
- June 2015
- September 2015
- December 2015
- March 2016
- June 2016
- September 2016
- December 2016
- June 2017
- September 2017
- December 2017
- March 2018
- June 2018
- September 2018
- March 2019
- June 2019
- September 2019
- December 2019
- March 2020
- June-ish 2020
- September 2020
- December 2020
- March 2021
- COVID-19
- The Portal Periodical
- Our Supporters & Partners
- Help with Lists
- State Partner Projects
- Portal "Google™ Translate" Disclaimer
- Sample Lists
- Site Map
- Sign-in
- Search Results
- Diagnoses & Conditions
- Anxiety Disorders & Attention Deficit Hyperactivity Disorder (ADHD)
- Attention-Deficit/Hyperactivity Disorder (ADHD) & Disruptive Behaviors
- Attention-Deficit/Hyperactivity Disorder (ADHD) & Mood Disorders
- Diagnosis Prevalence List
- Fetal Alcohol Spectrum Disorder Distinguished from Autism
- Mucopolysaccharidosis Type I & Motor Development
- Mucopolysaccharidosis Type I (MPS 1) Genetics
- Mucopolysaccharidosis Type I (MPS 1) Hematopoietic Stem Cell Transplantation & Enzyme Replacement Therapy
- Mucopolysaccharidosis Type I (MPS 1) Orthopedic Manifestations & Treatments
- Prader-Willi Syndrome & Cognitive & Psychiatric Issues
- Prader-Willi Syndrome Genetics
- Prader-Willi Syndrome Nutrition & Diet
- Prader-Willi Syndrome and Complications from Obesity
- Premature Infant and Low Birthweight
- Premature Infant and Retinopathy of Prematurity
- Other Names for Diagnoses & Conditions
- Angelman Syndrome
- Anxiety Disorders
- Cranial Deformation and Craniosynostosis
- Obsessive-Compulsive Disorder (OCD)
- Arginase Deficiency
- Asthma
- Gastroesophageal Reflux Disease
- Attention-Deficit/Hyperactivity Disorder (ADHD)
- Autism Spectrum Disorder
- Biotinidase Deficiency
- Celiac Disease
- Cerebral Palsy
- Osteoporosis and Pathologic Fractures
- Charcot-Marie-Tooth Disease (Hereditary Motor Sensory Neuropathy)
- Constipation
- Cornelia de Lange Syndrome
- Cystic Fibrosis
- Down Syndrome
- Fabry Disease
- Fetal Alcohol Spectrum Disorders
- Foster Care
- Fragile X Syndrome
- Galactosemia
- Hearing Loss and Deafness
- Infantile Spasms
- Inflammatory Bowel Disease
- Intellectual Disability & Global Developmental Delay
- LCHAD/TFP Deficiency
- Maple Syrup Urine Disease (MSUD)
- Mucopolysaccharidosis Type I (MPS 1)
- Myotonic Muscular Dystrophy Type 1
- Neurofibromatosis Type 1
- Obesity in Children
- PKU and Pterin Defects
- Postural Orthostatic Tachycardia Syndrome (POTS)
- Prader-Willi Syndrome
- Premature Infant Follow-Up
- Rett Syndrome
- Sickle Cell Disease
- Spina Bifida
- Spinal Cord Injury
- Spinal Muscular Atrophy
- Substance Use Disorders
- Tourette Syndrome
- Traumatic Brain Injury
- Tuberous Sclerosis Complex (TSC)
- Turner Syndrome
- 22q11.2 Deletion Syndrome
- Tyrosinemia Type 1
- VLCADD
- XXY (Klinefelter) Syndrome
- Acute Flaccid Myelitis (AFM)
- Bronchopulmonary Dysplasia
- Childhood Absence Epilepsy
- Congenital Diaphragmatic Hernia (CDH)
- Depression
- Duchenne & Becker Muscular Dystrophies
- Duchenne & Becker Muscular Dystrophies: Cardiomyopathy
- Headache (Migraine & Chronic)
- Homocystinuria (Classic)
- Lennox-Gastaut Syndrome
- Leukodystrophies
- MCADD (Medium-Chain Acyl-CoA Dehydrogenase Deficiency)
- Seizures/Epilepsy
- Somatic Symptom Disorder & Functional Neurologic Disorders
- Suicidality & Self-Harm
- Type 1 Diabetes
- Newborn Disorders
- Adrenoleukodystrophy (ALD)
- Argininemia
- Argininosuccinic Aciduria
- Beta-Ketothiolase Deficiency (BKD)
- Biotinidase Deficiency
- CACT & CPT II Deficiencies
- Carnitine Palmitoyltransferase 1A (CPT 1) Deficiency
- Carnitine Uptake Defect
- Citrullinemia Type I
- Citrullinemia Type II & Citrin Deficiency
- Congenital Adrenal Hyperplasia (CAH)
- Congenital Hypothyroidism
- Critical Congenital Heart Disease (CCHD)
- Cystic Fibrosis (CF)
- Fabry Disease
- Galactosemia
- Glutaric Acidemia Type 1
- Glutaric Acidemia Type 2
- Guanidinoacetate Methyltransferase (GAMT) Deficiency
- Hearing Loss & Deafness
- HMG-CoA Lyase Deficiency
- Holocarboxylase/Multiple Carboxylase Deficiency
- Homocystinuria (Classic)
- Isobutyryl-CoA Dehydrogenase Deficiency
- Isovaleric Acidemia
- LCHAD & TFP Deficiency
- Malonic Acidemia
- Maple Syrup Urine Disease (MSUD)
- Medium-Chain Acyl-CoA Dehydrogenase Deficiency (MCADD)
- Methylmalonic Acidemias
- Phenylketonuria (PKU)
- Pompe Disease
- Propionic Acidemia
- Pyruvate Carboxylase Deficiency
- Severe Combined Immunodeficiency (SCID)
- Short/Branched Chain Acyl-CoA Dehydrogenase (SBCAD) Deficiency
- Short-Chain Acyl-CoA Dehydrogenase Deficiency (SCADD)
- Sickle Cell Anemia
- Spinal Muscular Atrophy (SMA)
- 3MCC Deficiency
- 3-Methylglutaconic Aciduria (3-MGA)
- 2M3HBA Deficiency
- Tyrosinemia Type 1
- Very Long-Chain Acyl-CoA Dehydrogenase Deficiency (VLCADD)
- For Parents & Families
- Finding Quality Information
- Before a Diagnosis
- After a Diagnosis or Problem is Identified
- A New (or Old) Diagnosis - "You Are Not Alone"
- Caring for Children with Special Health Care Needs
- Adoption of Children with Special Needs
- Advocacy/Finding Your Voice
- Complementary and Alternative Medicine (CAM)
- Finding Accessible Childcare
- Foster Care of Children with Special Needs
- Groups and Therapies
- Handling Unawareness
- Hospital Care
- Management and Prevention of Constipation in Children
- Managing and Coordinating Care
- Night Terrors & Nightmares
- Safety Precautions for Children with Seizures
- Tips to Help Children Sleep
- Terms/Acronyms/Definitions
- Transportation and Travel for People with Disabilities
- Assistance in Choosing Providers
- What Choices Does Your Insurance Offer
- Choosing a Provider of Any Type
- Choosing a Primary Care Clinician
- Choosing a Subspecialist
- Choosing a Therapist
- Choosing a Mental Health Provider
- Choosing a Complementary and Alternative Medicine (CAM) Provider
- Dental Care Levels for CSHCN
- Trauma Treatment Models and Ratings
- Partnering with Healthcare Providers
- Top Ten Things to Do After a Diagnosis
- Early Services, 0-5 Years
- Education and Schools
- Bullying
- Navigating Transitions with Your Child
- Assistive Technology
- Taking Care of Yourself and Your Family
- Other Needs
- Legal Issues
- Diagnoses & Conditions - FAQs
- Angelman Syndrome (FAQ)
- Anxiety Disorders (FAQ)
- Arginase Deficiency (FAQ)
- Asthma (FAQ)
- Attention Deficit Hyperactivity Disorder (ADHD) (FAQ)
- Autism Spectrum Disorder (FAQ)
- Biotinidase Deficiency (FAQ)
- Celiac Disease (FAQ)
- Cerebral Palsy (FAQ)
- Charcot-Marie-Tooth Disease (CMT) (FAQ)
- Childhood Absence Epilepsy (FAQ)
- Childhood Obesity (FAQ)
- Constipation (FAQ)
- Cornelia de Lange Syndrome (FAQ)
- Cystic Fibrosis (FAQ)
- Depression (FAQ)
- Down Syndrome (FAQ)
- Duchenne & Becker Muscular Dystrophy (FAQ)
- Fabry Disease (FAQ)
- Fatty Acid Oxidation Disorders (FAQ)
- Fetal Alcohol Spectrum Disorders (FAQ)
- Foster Care (FAQ)
- Fragile X Syndrome (FAQ)
- Galactosemia (FAQ)
- Headache (FAQ)
- Hearing Loss and Deafness (FAQ)
- Homocystinuria (FAQ)
- Infantile Spasms (FAQ)
- Inflammatory Bowel Disease (FAQ)
- Intellectual Disability and Global Developmental Delay (FAQ)
- Leukodystrophy (FAQ)
- Maple Syrup Urine Disease (MSUD) (FAQ)
- Mucopolysaccharidosis Type I (MPS I) (FAQ)
- Myotonic Muscular Dystrophy (FAQ)
- Neonatal Opioid Withdrawal Syndrome (NOWS) (FAQ)
- Neurofibromatosis Type 1 (FAQ)
- Phenylketonuria (PKU) (FAQ)
- Postural Orthostatic Tachycardia Syndrome (POTS) (FAQ)
- Prader-Willi Syndrome (FAQ)
- Premature Infant Follow-Up (FAQ)
- Rett Syndrome (FAQ)
- Seizure Disorders (FAQ)
- Spina Bifida (FAQ)
- Spinal Cord Injury (FAQ)
- Spinal Muscular Atrophy (FAQ)
- Tourette Syndrome (FAQ)
- Transgender and Gender-Diverse Youth (FAQ)
- Traumatic Brain Injury (FAQ)
- Tuberous Sclerosis Complex (FAQ)
- Turner Syndrome (FAQ)
- 22q11.2 Deletion Syndrome (FAQ)
- XXY Syndrome (FAQ)
- Type 1 Diabetes (FAQ)
- Mental Health
- Story Central
- Funding Your Child's Special Needs
- For Physicians & Professionals
- The Patient-Centered Medical Home
- Coding & Billing
- About Children & Youth with Special Health Care Needs (CYSHCN)
- Care Coordination
- Common Issues for CYSHCN
- Caring for Transgender & Gender-Diverse Youth
- Children with Short Stature Born Small for Gestational Age
- Contraception & Menstrual Management
- Developmental Coordination Disorder
- Drooling in Children with Special Health Care Needs
- Integrative Medicine for CYSHCN
- Mild Traumatic Brain Injury (TBI) & Post-concussive Syndrome
- Neonatal Opioid Withdrawal Syndrome (NOWS)
- Oral Health
- Pain Management
- Procedural Anxiety
- Puberty and Pubertal Variations
- Seizures & Epilepsy
- Self-injurious Behavior
- Sensory Processing/Integration Disorder
- Sexuality & Children with Disabilities
- Skin and Wound Care for CYSHCN
- Sleep Issues
- Syncope
- Toe-Walking
- Toilet Training Children with Complex Medical Conditions
- Types of Hearing Loss
- Education & Schools
- Feeding & Nutrition
- Guidelines & Algorithms
- Bilirubin Screening & Testing in Newborns
- Clinical Guidelines for Care of Children with Medical Complexity
- Evaluation of Developmental Delay
- Evaluation for Suspected Ehlers-Danlos Syndrome
- Newborn Differences of Sex Development (DSD) Admission Checklist
- Newborn Palliative Care Pathway
- Newborn Transition Care Guideline
- Pediatric Diabetes Screening Algorithm
- Prenatal Urinary Tract Dilation Care Process Guideline
- Medical Technology
- Screening & Prevention
- Autism Screening
- Childhood Lead Exposure
- Childhood Obesity Screening & Prevention
- Congenital Cytomegalovirus (CMV) Related Hearing Loss
- Dental and Oral Health Screening
- Developmental Screening
- Folic Acid Supplementation & Neural Tube Defects
- Hearing Screening
- Infant & Early Childhood Social-Emotional Screening
- Maternal Lead Exposure
- Mental Health Screening for Children & Teens
- Prevention of Recurrent Preterm Birth
- Postpartum Depression Screening
- Psychometric Testing
- Screening for Eating Disorders
- Screening for Sleep Problems
- Toxic Stress Screening
- Transition Issues
- org.medhomeportal.site.navigation.NavigationService$_showChildren_closure5_closure15@2d0e4a20
- CME Options
- TBI Continuing Medical Education
- Cornelia de Lange Syndrome Continuing Medical Education
- Get Help